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Development and adoption of a global standard set of outcome measures that matter to men diagnosed with advanced prostate cancer

Country
Australia
Implemented by
International Consortium for Health Outcome Measurement (ICHOM)
Report Card Date
31 July 2015
Reporting period
July 2012 to July 2015
Project Status
Project Completed

AUD 106,616

Movember Funding to Date

What we seek to achieve

To define a minimum set of health outcome indicators and their measurement that are the most important to collect in the clinic, and in follow up treatment for men who have advanced prostate cancer. Standardising this and the collection method will lead to better reporting and research, which will foster changes in practice, improving the outcomes for men who have been diagnosed with advanced disease.

How the project works

ICHOM facilitated an international group of experts who met over a number of months to collaboratively develop a set of standardised outcome measures for advanced prostate cancer, which includes information regarding diagnosis and treatment, as well as assessment of the man's quality of life after treatment.

These measures will then be promoted for inclusion in prostate cancer registries globally as well as local collection and reporting.

What we are doing / have done

A working panel of leading global experts has developed a common global set of key health outcome measures for men with advanced prostate cancer, including the following domains: acute complications of treatment, performance status, pain, urinary and bowel symptoms, sexual dysfunction, fatigue and vitality, physical functioning, emotional functioning and well-being, disease progression cause-specific and overall survival. 

The standard set has been released and an article published in European Urology: "Development of a Standardized Set of Patient-centered Outcomes for Advanced Prostate Cancer: An International Effort for a Unified Approach"

To view the Project website please click here.
 

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For more information on this project or any of the Movember Funded Projects please contact programs@movember.com

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